11 Tips For Traveling With ME/CFS or FM
Traveling long distances with ME/CFS or FM - most of us avoid it at all costs! It's just too much for our bodies to handle!
I had the very same opinion because I was (and still am) largely
housebound due to Post Viral Fatigue Syndrome (also known as ME/CFS).
But as a result, I had forfeited seeing my beloved family (who live
abroad) for four long years. So recently, I decided to 'bite the bullet'
and go. Post Viral Fatigue Syndrome or not.
I had a lovely time there, but the voyage there and back raised quite a
few issues for me as a sufferer of Post Viral Fatigue Syndrome.
When it comes to ME/CFS no one sufferer has the same experience as the
next. For a start, you may suffer from this condition less or more
severely than I do. You probably also experience a different mix of
symptoms. But there are a few things you can bear in mind if you do plan
on making a long trip:
1) Rest adequately beforehand.
This might mean not exerting yourself mentally or physically for a
number of days or even weeks beforehand - easier said than done, I know.
But bear in mind that resting is a BIG priority PRE-trip.
2) Plan your trip.
Leave LOTS of time in-between train, bus or plane times so that you
don't have to rush. **Over-estimate** the amount of time it will take
you. That way, if you get there early you can just sit and rest instead
of rushing and stressing, which will only make you feel more weak and
ill.
3) Get help.
If you're making a long trip then it's advisable that you ask someone
(like a relative or friend) to accompany you there and back. Ideally
this would be someone who understands your condition and how it affects
you. If you have trouble walking (or if this wears you out too much
usually) then consider asking someone from the train or plane company to
meet you with a wheelchair. Most large commercial companies seem to
offer this service, but you usually have to tell them in advance. You
might also consider using a walking stick. Anything to help you get
there in one piece, right?
4) Don't rush.
Pack slowly. Don't leave it until the last minute! I had an open
suitcase in my bedroom in which I put things as I thought of them. I
also made a check list for the morning of the trip, so that I didn't
forget the things that I needed to pack after using them that morning
(like toothbrush, toothpaste, tablets etc).
5) Pack light!
If you're going on a short trip, then maybe you can get away with not packing any luggage at all?
----- SIDE NOTE -----
If you're traveling to a different time zone, consider taking some ear
plugs and a light-blocking sleep mask with you, just in case you need to
sleep during the day.
----- SIDE NOTE -----
6) Don't forget to pack your medicines, vitamins, and supplements!
Don't make the mistake of not packing enough. Count out how many tablets you'll need just to make sure.
7) Warn the people you're going to be staying with about your needs.
This may be your family, friends or the hotel manager. Let them know
about your sleeping habits and your dietary needs. Is there anything you
*can't* eat or drink? Caffeine or dairy, for example? Should they get
some special food or drink in like say, soya milk?
8) Bring a book on ME/CFS with you just in case the people you stay with are interested in your condition.
If you have ME/CFS then I really recommend Lynn Michell's book
'Shattered', because it really explains what it's like to live with the
condition. AND it packs a punch - just in case you face any skepticism
while you're there! No need to start explaining yourself - just hand
them the book. ;)
---------- SIDE NOTE ----------
To read a complete review about Lynn Michell's book, visit:
http://www.sleepydust.net/CHRONIC-FATIGUE-SYNDROME-AND-TREATMENT-book-LM-shattered.html
---------- SIDE NOTE ----------
9) Sensory overload.
When you suffer from ME/CFS, visual and aural stimuli can be too
overwhelming for your brain to process adequately. This is especially
true when you're traveling...
... the noise of the train, bus or plane, the chatting people, the fast
moving countryside outside, the throng of other travelers...
All of this can play havoc with your brain and can end up making you
feel even *more* exhausted, and your brain even *more* foggy!
There's not much you can do about this. But say you're on a train for
example - if the fast moving countryside is making you feel dizzy, then
try to avoid looking out the window. Close your eyes if you have to, or
wear a sleep mask. If you find that you're getting dizzy and tired when
you're in a busy corridor full of commuters in the subway for example,
stop and face the wall for a few seconds to regroup and regain your
clarity and balance.
10) Wear some magnetic insoles.
I had made it a point to see my Nutritionist/ Kinesiologist before I
left for my trip abroad. She tested me with all the supplements I took
daily, and found that the 'Pure Synergy' superfood powder really raised
my vital force (see point 11 below).
But perhaps even more astounding was the magnetic insoles she gave me -
they raised my vital force so much that at first, it literally felt like
I was standing on a power pod! I could even feel a subtle tingling
sensation in my legs!
I wore my magnetic insoles on the trip and I have to say that I *did*
feel more energized! It's a very subtle feeling and after an hour or so
of using them the tingling went away. You may or may not have the same
sensations when you first try them - depending on how severe your ME/CFS
is and how susceptible you are to external forces. But they're well
worth a try. I now make it a point to wear my magnetic insoles whenever I
have to venture outside and now that I know how much they help me, I
most certainly wouldn't be without them.
---------- SIDE NOTE ----------
You can check out my full review of wearing magnetic insoles here:
http://www.sleepydust.net/ME-CFS.html#magnetic
---------- SIDE NOTE ----------
11) Perhaps most importantly, pack some nourishing food and supplements specifically for your voyage.
It's important to eat small amounts regularly especially when you
travel. It's not a good idea to eat sugary foods or anything containing
caffeine (including coffee, tea, sweets or chocolate) because although
that may pep you up for the first few minutes, they are likely to make
you feel a lot worse in the long term.
I took a few of Dr Gillian McKeith's 'Living Food Energy Bars' with me -
I always keep a spare one in my handbag for emergencies anyway. Nuts
are also a great idea when you're traveling (if you're not allergic to
them that is).
I also took some of that amazing 'Pure Synergy' superfood powder, and
mixed it in with some cooled herbal tea in a small bottle. No sugar. No
caffeine.
It was my energy pep-up drink - and I swigged it all the way back on my voyage. It did the trick.
---------- SIDE NOTE ----------
You can read my in-depth review of Pure Synergy here:
http://www.sleepydust.net/ME-CFS.html#pure
---------- SIDE NOTE ----------
So there you go - eleven things that will help to make any long trip less stressful and exhausting. Bon voyage!
Copyright, Claire Williams, 2003-2005. All Rights Reserved.
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Claire Williams is editor of sleepydust.net and has suffered from Post Viral Fatigue Syndrome since 1995.
She created sleepydust.net to help ME / Chronic Fatigue Syndrome and
Fibromyalgia sufferers deal with their condition - from handling their
money worries, to recovering from their illness...
About the Author
Claire Williams is editor of sleepydust.net and has suffered from Post Viral Fatigue Syndrome since 1995.
She created sleepydust.net to help ME / Chronic Fatigue Syndrome and
Fibromyalgia sufferers deal with their condition - from handling their
money worries, to recovering from their illness...
Written by: Claire Williams
